Dystonia like symptoms after big big days?

Wow, this must be very freaky for you but it is medically fascinating. Beyond a nutritional component, one guess would be that you have a very rare gene mutation (s) that lead to this. 

as to what you can do, 23 & me is still in business and getting their genetic analysis is cheap. One of the things they are approved to do is provide analysis of mutations associated with increased probability of developing certain diseases. I believe the Parkinsons mutations are one of these. Certainly if you are thinking of asking for a Parkinson’s medication, being able to show a HCP that data would be valuable. But more importantly it could be important info for you to know.

Another option is, there is a company called sequencing dot com which does whole genome sequencing and your DNA can be analyzed for 15000 rare mutations. I’m not at all clear on the pricing model. You pay a set price for the sequencing and then you pay extra for the reports?

But it’s also not clear if even if you find out you have a specific rare mutation associated with a specific rare disease, what good that would do you. Plenty of things have no treatment.  Having said that I’m a big believer in “knowledge is power”.

Practically, two things: 1. Be super mindful of your hydration. Gatorade is so important. I have about 100 oz fluid of various types over a 12 hour exercise day to not be dehydrated. 2. have you ever been prescribed a muscle relaxer like cyclobenzaprine, and does that help?

Good luck, 

Phyl ( former cell and molecular biologist) 

Marc801 Cwrote:

WTH are you talking about? 

He’s going to give you a link for a great all natural tea that will detox your body. 

Marc801 Cwrote:

WTH are you talking about? 

Dip test:

Spiral rip a white T-shirt until you get a 1-inch strip of cotton that's about 36" long. Swallow the strip, making sure to leave a few inches hanging out of the mouth. Remove the strip. If there's parasites on the end of the strip, your levels are high.

Marc801 Cwrote:

WTH are you talking about? 

There are “functional health” practitioners who will measure just about anything under the sun, including parasites. As you might’ve guessed, most results are hogwash, though the testing itself parasitizes cash from unwitting clients. Conveniently enough, these same guys also tend to sell miracle “cures” for the dubious stuff they find.

We do coexist with a bunch of parasites, however. While most people are probably aware that microrganisms live on and in our bodies, they probably don’t realize viruses (obligate parasites) do too. It’s even got a name: the human virome.

I get this too, except not in the head and usually not so severe. My mom has a history of restless leg syndrome. 

Nate Slavinwrote:

Dip test:

Spiral rip a white T-shirt until you get a 1-inch strip of cotton that's about 36" long. Swallow the strip, making sure to leave a few inches hanging out of the mouth. Remove the strip. If there's parasites on the end of the strip, your levels are high.

Now this is some science.

Cherokee Nuneswrote:

Ambien. 

I couldnt fathom taking this regularly. I've used it "recreationally" from time to time and it takes a full day to recover from the brain fog. I've seen more irrational behavior from people on ambien + alcohol than a red rocks sts9 show. 

Catecholamine washout? 

I couldnt fathom taking this regularly. I've used it "recreationally" from time to time and it takes a full day to recover from the brain fog. I've seen more irrational behavior from people on ambien + alcohol than a red rocks sts9 show.

Recreatioinal ambien + alcohol = drug abuse. I'm not talking about that. You just need enough to fall asleep, a half, maybe even a 1/4 pill. Anyway, it was just a suggestion.

Tyler Stockdalewrote:

Now this is some science.

It isn’t a t-shirt, but the Entero test for Giardia involves swallowing one end of a string, effectively fishing for parasites.

On the other end, there’s the tape test for pinworm.

I have had similar experiences after a huge day. One thing that helped me understand the problem and alleviate the symptoms was realizing that I felt a lesser version of the epic day restlessness/body discomfort when I tried fasting for a few days straight. I've done ~10 3 day fasts in my life and for the first few, I had serious trouble falling asleep, feeling like I had restless leg syndrome throughout my entire body. I was taking salts during the fast, but my salts were limited to sodium and potassium. At the behest of my wife, I tried adding magnesium and calcium in supplement form, and that combined with the other salts really did the trick. I took two cal mag zinc, if I recall correctly it amounted to something like 200mg of calcium, 500mg of mag, 50mg of zinc. Finally, I felt normal and could easily sleep even after 3 days with no food. Nowadays when I know I'm having a 14+ hour day, I'll put salts in my water, bit more than what you would find in say Pedialyte, and before bed I'll take two cal mag zincs. Really seems to do the trick. 

Permabetawrote:

There are “functional health” practitioners who will measure just about anything under the sun, including parasites. As you might’ve guessed, most results are hogwash, though the testing itself parasitizes cash from unwitting clients. Conveniently enough, these same guys also tend to sell miracle “cures” for the dubious stuff they find.

We do coexist with a bunch of parasites, however. While most people are probably aware that microrganisms live on and in our bodies, they probably don’t realize viruses (obligate parasites) do too. It’s even got a name: the human virome.

I ignore the supplements and treatment plans the grifters sell. But they can be a significant health problem. 

X Foliatorwrote:

I ignore the supplements and treatment plans the grifters sell. But they can be a significant health problem. 

Err..citation needed. Is parasites the new term for toxins?? Because I've spent the majority of my savings on becoming toxins-free over the past three years, and if I spent all that money on something that was true but not the True label of my issues, then that'd be great!! I'd know what I need to buy to be healthy. That's always been my motto: spend money to be healthy by removing toxins or something else nonspecific! You don't get to the ripe age of twenty-three by just doing willy-nilly, let me tell you. It's cost me a lot of money.

X Foliatorwrote:

I ignore the supplements and treatment plans the grifters sell. But they can be a significant health problem. 

Parasites absolutely cause health problems. Ignoring viruses (technically parasitic), malaria immediately comes to mind, killing ~1/2 million people per year.

The good news is, adequate hygiene and sanitation limit parasitic infections in the developed world. For this forum, giardia is probably the main one to worry about, acquired through drinking contaminated water, from untreated wells or freshwater streams.

For most people though, it’s self-limited, so no treatment is necessary. No cleansing required.

That takes care of protozoa.

Kids sometimes get helminths. Growing up in the SE, I had pinworm. But again, it’s usually self limited. Flukes are a non-issue in the US.

I do appreciate the anti-parasite “cleanse” being named after a fungus, however.

ETA For hunters consuming a variety of game, all bets are off.

Several years ago I had big day where after waking up and thinking I had rehydrated, my entire thigh on both legs cramped, as if frozen solid, and completely locked for a few minutes leaving me incapacitated. 4/10 on pain scale. I also had blurry vision out of my left eye on another big day more recently. Went away also the next day. I'm not medical expert, so not sure if this is relevant to dystonia.

This thread makes me super thankful for how my body respondes to huge days. Hope you all find something that works to mitigate your symptoms.
Seems like for a lot of you Cal/Zinc/Mg/electrolytes do great things... I know that Mg is crucial in regulating nerve function, including regeneration of nerves, and protecting nerves.
God knows I'll revisit this thread if I ever join this club!

Kyle Elliottwrote:

Magnesium does wonders. It helps when I have restless legs.

I see your magnesium and raise you a magnesium glycinate